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BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
BPSU
Conditions
Rare disease
Engaging children and young people
Children and young people's voice
Patient experience
Patient involvement
Research
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Turning the tide - harnessing the power of child health research (2012)

Children deserve, and parents expect, the best healthcare for their children. Research is vital to progress; we therefore produced this report in 2012, identifying the issues and making key recommendations for child health research in the UK. These recommendations include addressing paediatricians' ...
Research