Patient experience

News

Response to the NHS Race and Health Observatory report

14 February 2022

On Monday, 14 February 2022, the NHS Race and Health Observatory published a rapid review of ethnic inequalities in healthcare and within the NHS workforce.

News

The PERFORM project wins the PIER award

10 May 2021

With support from NIHR, we have run the Paediatric Involvement and Engagement in Research (PIER) award for the second year now to recognise multi-disciplinary teams that involve and engage children and young people in their research. Here, we speak with the winning team about their project.

Basic page

First year of care PREM survey - improving paediatric diabetes healthcare

Data collection for our parent and patient reported experience measure (PREM) finished on 23 January 2024. This survey focused on the first year from diagnosis. Results will help paediatric diabetes teams understand what matters to you - as a child or young person with diabetes, or a parent/carer...

Diabetes

Patient experience

Resource

Digital by default or digital divide? Virtual healthcare consultations with young people 10 – 25 years

One effect of COVID-19 has been the rise in remote consultations. This joint statement, developed in September 2020, outlines some of the issues that need to be considered when undertaking virtual consultations with young people.

News

Message from the President - 3 August

3 August 2020

Russell has heard from many members with concerns for at-risk and vulnerable children in this period, and we're now seeking your insights. He also welcomes the UK government's recent announcement about obesity and junk food advertising, but we need to understand how people's lives are and see the de...

Document

Supporting LGBTQ+ children and young people - principle statement

The purpose of this principle statement is to: 1. Outline our position on the rights of LGBTQ+ people to eliminate discrimination and stigma 2. Understand the needs of LGBTQ+ children and young people 3. Support health professionals in their role of providing support to LGBTQ+ children and young ...

Children and young people's voice

Patient experience

Service design

Society

Equality, diversity and inclusion

LGBTQ+

Document

COVID-19 &Us - views from �� &Us

�� &Us is working with young people to reflect on their experiences of COVID-19 and the lockdown. This will help inform future planning for times of national crisis such as a natural disaster, another pandemic, terrorist incident or other cause of nationwide disruption.

Mental health

COVID-19

Adolescent health

Engaging children and young people

Children and young people's voice

�� &Us

Patient experience

Wellbeing for children and young people

Resource

Health diary and stay at home activities for children and young people

In 2020 �� &Us created some things to do when staying at home, for example due to national lockdowns. We have a health diary to write or draw your questions or feelings between appointments. And an activity pack so you can help the NHS and entertained (plus get a certificate!).

COVID-19

Children and young people's voice

�� &Us

Patient experience

Resource

Suspected side effect from a medicine - how to report

The Medicines and Healthcare products Regulatory Agency (MHRA) “Yellow Card Scheme” is the UK system for collecting and monitoring information on suspected safety concerns or incidents involving side effects from medicines (also known as adverse drug reactions or ADRs) and medical devices.

Drugs and medicines

Patient experience

Patient safety

News

A rare treat - two young people report back from our rare disease tea party

8 August 2019

Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...