Engaging children and young people

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Engaging children and young people

News

Spring brings renewed energy, drive and optimism - President's blog

25 March 2022

Camilla welcomes innovation and courage, and shares some of the exciting work happening across paediatrics.

News

Standing in solidarity - President's blog

11 March 2022

Amidst the horror and tragedy, Camilla updates on what we can all do to make a difference. She also reflects on the Cass Review, NHS Reforms, International Women's Day and the St David’s Day Conference.

News

Rare Disease &Us - views from children, young people and families

28 February 2022

Over the last year, children, young people and families have been thinking about rare diseases and what matters to them. To mark Rare Disease Day 2022, the �� Engagement Committee has pulled together views and thoughts in this letter.

News

Response to the NHS Race and Health Observatory report

14 February 2022

On Monday, 14 February 2022, the NHS Race and Health Observatory published a rapid review of ethnic inequalities in healthcare and within the NHS workforce.

News

CEO update - autumn 2021

26 November 2021

In her quarterly bulletin ahead of an extremely difficult winter, our CEO, Jo Revill writes about the intensity of workforce and service pressures and highlights the importance of our imminent workforce census. She also thanks Board members, who we say goodbye to, and warmly welcomes their successor...

News

Today we create our futures - President's blog

19 November 2021

Camilla writes about recent ‘virtual’ visits to Scotland and Sri Lanka and also discusses the enormity of the climate change challenges we face and how we all have a role to play. She talks about our new sustainable future with Archives of Disease in Childhood (ADC) online and highlights upcoming el...

News

�� responds to the Northern Ireland Commissioner for Children and Young People (NICCY) report on paediatric waiting lists

19 October 2021

Today, the �� responds to this NICCY report which examined the length of time children and young people are waiting to access appointments, the current reporting systems, the impact of delayed care and factors which contribute to paediatric waiting times across Northern Ireland.

Document

Epilepsy12 Youth Advocates

This is a group of epilepsy experienced or interested children, young people and families who volunteer together to improve care for epilepsy patients and their families. Read about their award-winning project, the Clinic Chat Check List, and their experiences and tips on developing a school care pl...

Epilepsy

Engaging children and young people

�� &Us

Quality improvement

Service design

News

Our history, your future- Philip McCullough

12 August 2021

As �� celebrates its 25th birthday, 25 members and friends have shared stories about a case or memory that stayed with them. These stories will be published throughout 2021.

Resource

Epilepsy12 - national organisational audit and clinical audit - 2021

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2021, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

Engaging children and young people

Children and young people's voice